“You’re normal”

Fragility is humbling and frightening

 

By Caitlin Kelly

It’s been a rough week, slowly recovering from my last radiation treatment — October 15 — and still fighting its cumulative fatigue and insane itchiness on my left breast. I was at my wits’ end, crying in public, (I almost never cry anywhere), just done.

I had a follow-up meeting with the radiation doctor, to be told I’d gained (!?) 10 pounds in six weeks and now needed blood tests to see why. This despite seeing my clothes fit more loosely and gaining compliments on my apparent weight loss.

Our GP, thankfully, saw us an hour later and did the tests; (I’m fine.)

But I started crying in his office, weary of all of it.

I apologized for being a big blubbering baby, ashamed and embarrassed by my inability to control my emotions.

“You’re normal,” he said, calmly and compassionately.

Jose, my husband, sat in the room with us, listening as I absorbed this pretty basic fact.

What, I’m not made of steel?

I’m…vulnerable?

Human?!

Kelly’s tend to be (cough) ambitious and driven; three of us won major national awards in the same month, when I was 41, my younger half-brothers then 31 and 18; I for my writing, they for business skills and for a key scientific discovery, (yes, the youngest!)

We tend to aim high, compete ferociously for as long as it takes, (each of my books, later published by major NYC houses, were rejected 25 times), and usually win, dammit!

We keep our emotions very close to the vest and keep small, tight circles of intimates. I don’t really do acquaintance.

 

Being weak, scared, in pain, exhausted and, even worse, letting others see us in this condition?

 

Terrifying.

I’m slowly getting used to it.

Compassion for my fragility is my new oxygen, as much for myself as the gratitude I feel for that shown to me.

 

 

Amid California’s hellfire, he saved a horse

Welcome to hell — and Augie, a horse with, for the moment, nowhere safe to go. But read on…

All images in this post — NO REPOSTING! — courtesy of photographer PeterDaSilva.

 

By Caitlin Kelly

As anyone watching the news knows, parts of California have been devastated by wildfires, causing thousands to flee their homes and, so far, 71 to lose their lives — with more than 1,000 people missing —  the state’s deadliest fire in 17 years.

 

 

 

 

First responders and firefighters are helping residents flee to safety.

Including many pets and animals.

 

Members of the UC Davis Veterinary Emergency Response Team, Ashley Nola (left) and Catherine McFarren (right), tend to burns on a dog that was brought in to the Butte County Fair Grounds where large animals are being sheltered during the Camp Fire, as it continues to burn through the region, fueled by high winds in Butte County, California.

 

 

 

Redding policemen who promise to return, found a trailer to rescue Augie the horse after his owner had to leave him in a shopping center parking lot, as fire grew closer and she had to leave him since she had no way to get him out as the Camp Fire burned out of control through Paradise, California.

 

But so are some amazing journalists, one of them a dear friend, San Francisco-based photographer Peter daSilva, who I first met in 2012 when we worked on a New York Times story about Google together. He is a kind, gentle, meticulous professional.

I’m honored that Peter has allowed me to share his story here of helping a fleeing California woman save her beloved horse —– he’s been inundated with media requests, almost all of which he’s refused — but said I could tell it here, and to include his images, all of which were shot on assignment for the European Press Agency.

With his permission, I’ve reprinted the story (slightly edited) from his own Facebook page:

To Hilary Johnson and Augie of Paradise, Calif.- I just wanted to let you know that the three Redding law enforcement officers and myself kept our promise.

I met Hillary and Augie in a shopping center parking lot on the afternoon of Nov. 8th. She had just escaped the flames of the fire that burned through Paradise, CA with just the clothes on her back, riding Augie to a safe place.

Hillary lost her home and everything to the fire.

As she stood watching the impending movement of the fire with other residents of Paradise, law enforcement were encouraging all of us to leave, as the flames were just burning across the street.

While standing in the lot, Hillary in tears walked passed me. I stopped her to ask what was going on.

She had made the decision to set Augie free since there was no transport for him and she could not just leave him tied up in the lot.

As concern grew, three Redding officers who had rescued dogs left behind in abandoned homes talked her out of this decision. They were not going to let this happen…as instantly a brain storming session started on how to get Augie a ride. Aided with the help of locals, they were directed to a U-Haul location where they might be able to commandeer a trailer.

So off they went, setting off on a quest to save Augie.

So Hillary said her good byes, Can’t tell you how hard it was to watch that.

 

And yes I kept my camera at my side.

 

I promised her that I would stay as long as I could, to then cut Augie loose before the fire took over the area, as she and the other residents prepared to drive off to safety, with Augie tied to a shopping cart cage moved to a opening in the lot.

 

So there we were, Augie and I, standing in a parking lot ALONE with flames visible in the near distance, smoke turning day into night. Hoping for the officers to have found a trailer.

Funny what goes through your mind when you’re standing with a horse with hell surrounding you…

 

I put a blinking red LED light I use during protests on him, so he could be seen in the darkness of the choking smoke, if I did let him run.

Smoke continued to thickened darken the skies, when a truck with a utility trailer drove near — those three Redding officers!

With smiles on their faces, seeing we were still there. They spent no time getting the trailer opened. It took a little bit of coaxing to get him in to the trailer. About 5-10 minutes. Augie was amazingly calm and did what he needed to do.

Now it was time to leave, with three trucks, one with a utility trailer and myself. We convoyed through fire-lined streets of Paradise where I left them to continue to safety as I went back to work.

I have no idea if Hillary was reunited with him.

But I know I did the right thing.

 

Then the great news!

 

Hillary and Augie have been reunited!

Law enforcement officers from Redding were able to contact Hillary shortly after rescuing Augie, now being cared for at a ranch near Gridley.

Hillary is OK, banged up from a fall she took with Augie as they navigated four miles of fire and others fleeing, which spooked Augie the whole way from their home to the parking lot. She told me that she was sleeping in the back of a pickup truck somewhere in Chico.

First, I want to thank the true heroes…the first responders, firefighters and law enforcement officers from all over the state who put their lives on the line to save the residents, their animals, property and to protect what is left of the greater Paradise area.

I’m honored that you think I’m a hero, but it’s them you should honor.

As a member of the Press, not the “enemy of the people”. I and fellow colleagues  bring you the information of what is happening in and around the fire area, the voices of your community when you are not there to witness it yourselves.

Please remember, we understand your heartbreak and sorrow, sometimes we are victims of these tragic events themselves, and that includes the first responders who are also affected by the loss of homes and lives. And they still have to continue doing our jobs.

We are all human when it comes down to it.

Sorry we ask hard questions and make images in seemingly the worst moments of your lives. We are your eyes and ears when you can’t be there. So please bear with us.

 

I can’t speak for my colleagues, but every time I cover events like this, it changes me. Sometimes for the better and some time for the worst. Just glad I can share my experiences through outlets that inform the world for the better of all mankind.

 

 I just adhered to my personal moral obligation, to comfort a stranded new friend — it was not heroic.

I’m still working, doing 12-14 hour days covering the fire, working in the communication dead zone of the fire area most of the day. And then commuting back and forth to Sacramento for the night since all the available rooms are taken up by the displaced residents.

Augie and other animals are being taken care of, but their loved ones who care for them on a daily bases are VERY much in need too.

If you do care and want to be part of this moment, find an organization and donate to help the survivors of this tragic event.

Here are some places to donate!

Who’s your rock? And gravel…

By Caitlin Kelly

If you’re going to somehow get through a frightening time in your life — whether it’s health, work, family, marriage, kids’ issues — you need a rock, someone you can turn to who’s as firm and solid as a boulder, something steady and calm to lean against and take shelter behind, a fixed point you know will be there the next day and the next and the next, no matter what happens.

As I got my breast cancer diagnosis — ironically, sitting on rocks at the edge of the Hudson River in the New York town where we live — my husband Jose had just left for work in the city on the commuter train. I sat in the June sunshine alone absorbing this news, delivered by phone by my gynecologist.

 

Those vows include, for better and for worse, in sickness and in health…Sept. 2011

 

Since then, as he has been throughout our 18 years together, Jose has been my rock. For which I’m so damn grateful and so damn fortunate. He came with me to every meeting with every doctor, (and there have been five MDs), listening and taking notes as a second set of eyes and ears. I’m not a person who cries easily or often — maybe a few times a year — but in the past five months, have done a lot of that. He’s stayed steady.

There’s an old-fashioned word I really like — character. Jose has it. I’d seen it on multiple occasions as we were dating. I wanted it in my second husband, that’s for damn sure.

 

So lucky to have had the kindness of this fantastic team!

 

Then there’s gravel, a poor metaphor perhaps, for the pals and acquaintances whose love and sweet gestures have also proven hugely supportive, through letters, cards, calls, texts, flowers and even gifts. None of which I really expected.

Some live in distant countries. Some are editors I’ve worked with for years and have still never met. Some are women I went to school with decades ago. All of whom stepped up.

There were several putatively close friends I assumed would check in — and who proved wholly absent. That hurt. But it happens, and you have to know, especially with this disease, some people will flee and totally abandon you.

The most depressing thing I heard this summer — and it truly shocked me — is that some cancer patients have no one at all to turn to. No family. No friends. I can’t imagine facing the fears, pain, anxiety and many tests and treatments without someone who loves you sitting in the waiting room with you, driving you to appointments, holding your hand.

I recently got a call from a younger friend facing her own crisis, and was so honored and touched that she called me. I try to be a rock for the people I love. Sometimes I’ll fail them, I know.

But that’s what we’re all here for.

Be the rock.

 

Or be gravel.

 

But be there!

Life in cancerland: 18 tips

 

 

By Caitlin Kelly

Some reflections on my having entered — as of June 2018 — a new and sometimes overwhelming world; if useful, please share!

 

You are not alone

You may certainly feel it as you reel with shock and try to make sense of what will happen to you next. My early June diagnosis of DCIS, (a sort of pre-cancer, even though the word carcinoma does mean cancer!) is one shared annually by 44,000 American women.

 

You will likely be in shock and feel utterly disoriented

Even if your prognosis, as mine is, is excellent, you’re stunned.

One minute, you assumed you were healthy, the next…you’ve entered cancerland, filled with sights and sounds and sensations both foreign and unwanted, that you may never have experienced.

What the hell is an aromatase inhibitor?

What are my eight tattoos for exactly?

How tired and ill will treatment make me feel?

 

You face a learning curve

Until you’ve had a biopsy, you don’t know what it feels like, during and afterward. Same for chemo and radiation and other things likely to happen. It’s all new and unfamiliar and a lot to process, physically, emotionally, intellectually — and, in the United States — financially.

 

Ask as many questions as many times, of as many medical staff — including technicians — as you need, and take notes

It’s complicated stuff!

Don’t ever feel stupid or intimidated or rushed or that your concerns are unimportant. Health care includes feeling cared for, not just surgery and medications.

 

People who have never had experience with cancer may behave in hurtful ways

Even with the most loving intentions, people may say things (oh, it’s not that bad!) or do things (send you books about cancer, unasked for) that can leave you even more anxious, scared or disoriented.

They may also tell you to “fight” and “battle” — when (if they don’t know the details) this might not even be necessary, or might not be possible. Ignore them!

This is not what you want!

 

Get off the Internet and listen to your MDs

The first advice my gynecologist gave me — who told me the news by phone — was to not start reading about this on the Internet.

I didn’t and have not and will not.

But I make my living seeking and processing vast amounts of complex information as a journalist — how could I behave this way?

Because I’m human and had to process enough new information as it is!

I also have avoided any detailed conversations about this unless with fellow patients, and not even a lot of that.

 

Some people will flee

This can be painful. It’s them, not you. As one friend (whose wife died of lung cancer) said: “You don’t know what their vulnerabilities are.”

 

Some people will step up unexpectedly

This is a great gift.

 

You will need to let some new people in, even when that feels weird to you

I find this difficult, as someone who’s always been quite private. But without allowing others to know the details of your situation and to comfort you, it’s too hard.

 

Some people will over-share and overwhelm you with their medical story

Shut them down.

This is not the time for you to hear, process and empathize with others’ details and fears. This is the time for you to focus on your needs. That may feel unkind, even brutal. Just do it.

 

If at all possible, find a medical team and hospital you like and trust

You will be spending a lot of time in their offices, possibly daily, weekly, monthly and for many years to come. If you like, trust and respect them, you will feel safe — literally — in their hands.

If you have doubts, find a team you feel good about; this is more difficult if you live in a rural area or have poor health insurance, I know.

 

 

You’ll be seeing, and see and be touched by, a lot of people you have never met

That’s another stressor right there.

So far, I’ve seen more than a dozen different MDs, multiple technicians and been to two different hospitals. It’s a lot of new people, and different personalities, to cope with at once — in addition to your diagnosis and treatment.

As one friend told me, you’re spending a lot of emotional capital.

 

Ignore (most) others’ advice!

People will rush to give you all sorts of advice, leads, insights and tips. Everyone’s body is different. Everyone’s tolerance for pain is different.

Just because they or someone they know had a better/worse/horrific/painful outcome, this may not be your experience.

Don’t let their possibly frightening, unhelpful or inaccurate data bombard you while in a weakened physical or emotional state.

 

Educate a few people about your cancer — and let them do the talking for you

It’s time to conserve all your resources, especially time and energy. People who have not faced cancer, and your specific kind of it (what stage, where are you in treatment, invasive, recurring, metastatic, ER+, etc.) have no clue.

Having to keep explaining things to them can be too tiring and upsetting.

 

Do whatever comforts you most deeply

That might mean withdrawing from most social events to save your energy. Hugging your kids or pets. Knitting or playing video games or binge-watching TV, prayer and meditation.

 

 

Rest as much as possible

Your mind and body are under assault. Naps are your best friend.

 

You don’t have  to be “brave”

People will tell you how brave you are.

You’re just doing what you have to to stay alive, even if (as I have) you might be fearful and crying a lot to a few people. Even a good diagnosis is enough to shake you hard.

 

Ask for help — and don’t think twice about it!

You may need help getting to and from medical appointments — tests, bloodwork, chemo, whatever. Even if you’re not feeling tired or weak, it is deeply comforting to have a friend or loved one waiting for you when you emerge from whatever it is you faced that day.

Having someone to drive you there and back is a real blessing. Ask for it, and accept it with relief and gratitude. Same for dog-walking, babysitting, food shopping, cooking, laundry.

Love is action.

 

Why we need more apologies

By Caitlin Kelly

Time doesn’t heal all wounds. A sincere apology is a lot better!

 

Years ago, I had a job that was, to put it plainly, a brutal experience — alternating between being bullied and ignored by bosses and colleagues alike. It was at a Big American Newspaper, one now half its size, but then a very big deal and a well-paid job in a dying industry.

But I wasn’t about to quit, no matter how terrible it was to survive.

Then, years after I left, I met one of those former bosses again in another situation, and was quite nervous about how he might behave.

To my shock — and gratitude — he apologized if he’d made things worse for me.

How rare it is to receive an apology!

Here’s a great piece on the subject from Elle magazine, which I found thanks to this blog:

I have never spoken this phrase. To anyone. Not a lover, not a friend. Not a bad boss or a vindictive colleague. This is not for lack of opportunity. I’m a black woman in America. I have been owed plenty of apologies.

I just never believed I deserved to demand one.

In the instant that I watched Serena’s firm command, I anxiously searched my consciousness to determine why, in my 33 years of living, I had never demanded an apology I believed I was owed. I have certainly expressed personal and professional grievances; I have given voice to hurt feelings and frustrated moments with greater intention as I’ve grown in confidence—a confidence which is hard earned.

But the idea that someone would need to affirm responsibility for their actions and impact on me had just never occurred to me. I have quietly carried the scars of apologies desired but never received, seething with resentment but never questioning why I didn’t demand an apology in the first place. I have always known, as seemingly all Black mothers say, that “closed mouths don’t get fed,” and that it is rare that anyone receives that which they do not ask for. Still, I had not formed my lips to utter the words: you owe me an apology.

How many times in your life have you just sat there, seething, when we should have demanded an immediate apology for someone else’s shitty behavior?

Most recently, I sat beside a woman at someone’s landmark birthday party (hardly the time for a confrontation!) who scared the hell out of me about the upcoming radiation for my DCIS.

I was a bit shell-shocked by her attitude (she’s a naturopath); we’re often slow and deeply reluctant to demand an apology since we don’t want to make a scene in public (oh, how bullies count on this!) and react like deer in the headlights, inwardly appalled, but passive and stunned in the moment.

 

Too stunned to say “Excuse me?!!!”

 

Not to mention all the powerful people, usually male, who set and enforce the rules. It’s damn near impossible to “demand” anything when your survival depends on shutting up and putting up with appalling behavior.

There’s a lot of Internet conversation right now about the many men — shunned for harassing women sexually at work — now crawling back demanding our forgiveness and more of our attention, like Canadian former broadcaster Jian Ghomeshi, American comedian Louis C.K. .and American broadcaster John Hockenberry.

I don’t really care for excuses, like “I don’t remember” because, unfortunately, I can’t forget some of the worst moments from my own life.

You can wait a long time, maybe forever, for some people to apologize, but it doesn’t mean giving other miscreants a pass just because it’s become your default.

 

Here’s a recent piece from The Atlantic about having a high school friend-turned-would-be-rapist eventually apologize:

 

A few minutes later, I saw him coming back; it was the boy who’d tried to rape me. He had tears in his eyes, and he seemed almost overwrought. And right there—in the A&S department store in the Smith Haven Mall—he apologized profusely.

“It’s okay, it’s okay,” I kept saying to him. “I forgive you, don’t worry.” It was a weird ambush of intense guilt and apology, and it was the wrong place and time—but the thing was, I really did forgive him. My life had moved on, and things were better. It felt good to get the apology and—as it always does—even better to forgive him. He’d done a terrible thing, but he’d done what he could to make it right.

 

Have you ever demanded an apology?

Did you receive it?

Was it sincere?

Journalism’s less-visible heroes

The New York Times newsroom

 

By Caitlin Kelly

To those who’ve never worked in journalism, it’s easy to forget — or simply not know about — the many hidden talents that make radio, print, digital and television coverage possible.

They include coders, graphic designers, layout people, researchers, fact-checkers and copy editors.

While on-air anchors earn millions, and reporters and photographers, out in public are visible, without cameramen and women, young and hungry interns, production assistants and bookers, none of it is possible.

One of the things my husband, a career photographer and photo editor, and I enjoy is that journalism really is a team sport; without all those talents, it just doesn’t happen.

Here’s a fantastic story from The Walrus, arguably Canada’s quirkiest and most interesting national magazine (for whom I soon hope to be writing!), about the eight women who ran the switchboard of the Toronto Star. Their genius was essential in an era before Google and social media made our jobs  — i.e. finding people fast — so much easier.

 

To the reporters at the Star, the switchboard seemed capable of working miracles. And its feats were all due to dedication of eight women. Most came to the job with a background working switchboards, but the ones who stuck around were those who had the grit to call up dozens of people in the hopes of finding a source and then were persuasive enough keep them on the line. They took the job seriously: lugging yellow pages back from vacations abroad, leaving their home-phone numbers with reporters in case they were needed in a pinch, and working with reporters to revive leads that seemed long dead.

One of those operators was Eva Cavan, the switchboard’s supervisor for over three decades, who once tracked down the Star’s Washington correspondent by calling up every shop along Pennsylvania Avenue until a pharmacist was able to ID the reporter. During her tenure, Cavan’s team found the prime suspect in the 1972 Olympics massacre, located Terry Fox in Newfoundland by calling up stations he was likely to stop at, and convinced a control tower to delay takeoff so that the Ontario health minister could disembark and take a call with the Star.

I remember with fondness the operators at the Globe and Gazette, one of whom handed me the piece of paper informing me my French mentor had died.

This past weekend was a painful and emotional reminder that colleagues can be much more than the next guy or gal in the cubicle.

We attended the funeral of a man we all thought would live to his 90s, for sure, but who was struck down at 70 quickly and brutally by a rare cancer.

Zvi Lowenthal worked for 44 years at The New York Times, but you never read his name.

My husband worked for seven years inches from Zvi, an avid tennis player who — with Jose, his fellow photo editor — assigned and chose every photo for The New York Times’ business section. They were, according to their co-workers, an old married couple, and it was a good match: Jose is calm, steady, ice in his veins when the shit hits the fan. Zvi was warm, kind, meticulous, the kind of guy who made sure that freelancers got paper copies of their images, a gesture very few editors would ever bother to make.

And, when Jose was a Times photographer, Zvi had also been his editor. While Jose enjoyed seeing his name in the paper with every photo he took — in newspaper parlance his “agate” — editors never do.

The team managed to keep pictures coming through the most terrifying economic crisis since the Depression. It’s not easy to illustrate corporate malfeasance!

Today, American journalists are derided by the President, of all people, as “fake” and “disgusting”, inciting violence against us at his rallies.

 

Our skills and dedication  — visible or less so — remain essential to a functional democracy.

 

 

A few more thoughts about feelings

 

By Caitlin Kelly

 

It’s been quite the rollercoaster, kids!

First off — very good news! My surgery July 6 went great and I’m free of disease.

What a blessed relief. I start radiation treatment in September.

But…what a disorienting time it’s been.

Jose, my husband, and I are career journalists — who, since the age of 19 when we began working for national publications even as college undergrads — learned early that having, let alone expressing, our feelings was an impediment to just getting shit done.

When you’re on deadline, no matter how stressed/tired/hungry/thirsty/in pain you might actually be, you have to get the bloody story done.

Jose, working as a New York Times photographer, once stepped on a nail so long it punctured his boot and his foot while covering the aftermath of a hurricane in Florida. He’d flown down — yes, really — aboard Air Force One, as he’d been in Connecticut covering Bush. He got a tetanus shot as the jet took off to head back to New York.

But this has meant, for decades, whatever we truly felt in a difficult situation — also listening to and photographing war, trauma, crime victims, fires — we suppressed our fear, grief, sadness. It might have popped out later, privately, or not.

Ours is not a business that welcomes signs of “weakness” — you can lose the respect of peers and editors, losing out on the major assignments that boost our careers if you admit to the PTSD that can affect us — even if it privately stains our souls with trauma for years.

This cancer diagnosis, and the sudden and reluctant admission of my own very real vulnerability, blew my self-protective walls to smithereens.

I’ve never cried as much in my entire life, (I never was one to cry), even in the toughest situations, as I have in the past month.

Tears of fear and anxiety.

Tears of gratitude for friends’ kindness.

Tears of pain. It’s a much rougher recovery than four previous surgeries on my knees, shoulder and hip.

Tears of pure exhaustion from being medically probed and punctured for weeks on end.

Tears of worry I won’t get back to being wry, wise-cracking me. (If not, who will I be?)

I feel like a lobster cracked open.

I’ve spent my life being private, guarded and wary of revealing weakness, vulnerability or need.

My late step-mother loved to taunt me as being “needy.” That did it.

I was bullied in high school which taught me that authority figures who did nothing to stop it didn’t care about me as a person, just a number in a chair.

But this has been life-changing — not only in the rush of so many negative emotions — but the kindness, gentleness and compassion I’ve also felt with every single medical intervention. Ten minutes before being wheeled in the OR, I was laughing with my surgeon and her nurses. That’s a rare gift.

I also feel some shame at how infantile one becomes — focused with ferocious selfishness  — memememememememe! — when in pain and fear. Two dear friends were widowed and another’s adult daughter died of cancer within the same month as all of this, and it’s taken a lot of energy to offer them the attention and love they so need.

People have offered to talk to me about their experiences of breast cancer. I can’t. Too often, they plunge into detail and I can’t listen, process and empathize. It’s too much.

That may be my own weakness, because feelings can feel so overwhelming.

Interesting times….

 

The power of comfort

By Caitlin Kelly

When we’re feeling anxious, few things are as helpful as comfort.

It can be difficult for some people — private, feisty, super-independent — to open up wide enough to admit: “I need help!”

*cough*

But if you can, and if people respond with love, my oh my…

Self-soothing is also a crucial life skill.

It might be food or drink or a hug or a hand to hold.

 

My pre-op nerves soothed  by a tiny rhino. (Good band name!) It went well.

 

It might be a stuffed animal, whether you’re six, 16 or 60.

It might be a kind word in the middle of a tough moment or a gentle touch.

It might be a bright bouquet of flowers.

It might be a lovely notecard — on paper, sent with a stamp — that arrives just at the right time.

It might be the loving presence of your dog or cat — or husband/wife/partner.

It might be a view out the window of something lovely that soothes you.

It might be your favorite music.

It might be a familiar poem or prayer.

In a time of some personal anxiety, I have been truly grateful for all of these, arriving from Dublin and Paris and London and Hawaii.

Some of you have commented here and some have emailed me privately.

 

Thank you!

 

Some thoughts on being touched

By Caitlin Kelly

Touch can be soothing or frightening, a source of comfort or terror.

The past few weeks have made clearer — personally and politically — the importance of touch, physical and emotional.

Since telling people about my DCIS diagnosis, Jose and I have been deeply moved and touched by so many people, worldwide, young and old, friends, neighbors and colleagues, who have called and emailed to share their love and concern.

It’s been surprising to us — tough old boots of journalists that we are, working for decades in a fact-based business — to feel such a powerful wave of love and emotion.

We are very grateful.

The business of diagnosing breast cancer, (like other forms, perhaps),  also means your body gets touched by many strangers, compressed repeatedly, punctured with needles and having markers inserted and written on your skin. By the time of my surgery, July 6, I will have had seven different medical appointments and five different pre-op tests.

When a medical professional, who does this job every day, is kind and compassionate, communicating it through their gentle touch — the nurse who held my hand through my biopsy, the phlebotomist so skilled I didn’t feel a thing as she took my blood, the radiologist who stroked my other wrist even as he guided the needle — it is deeply moving and so comforting.

As someone who has always really lived in her head — a thinker, not a feeler — and a lifelong athlete who sees (and appreciates!) her body not for its size or shape or putative beauty — but instead for its strength, flexibility and resilience, this is all disorienting in the extreme.

Of course, grateful for a medical team we like, but it is so odd to suddenly be — as of course we all are, every day (even as we may deny it) — so corporeally vulnerable and now so…handled.

The larger political current context — of tiny children being taken from their parents and shut into cages by American officials — is so grotesque it would be a parody, if it were not.

From Arizona Family:

Dr. Colleen Kraft, the head of the American Academy of Pediatrics, said that she visited a small shelter in Texas recently, which she declined to identity. A toddler inside the 60-bed facility caught her eye — she was crying uncontrollably and pounding her little fists on mat.

Staff members tried to console the child, who looked to be about 2 years old, Kraft said. She had been taken from her mother the night before and brought to the shelter.

The staff gave her books and toys — but they weren’t allowed to pick her up, to hold her or hug her to try to calm her. As a rule, staff aren’t allowed to touch the children there, she said. [italics mine]

“The stress is overwhelming,” she said. “The focus needs to be on the welfare of these children, absent of politics.”

 

From Texas Monthly:

Sometimes mothers—I was talking to one mother, and she said, “Don’t take my child away,” and the child started screaming and vomiting and crying hysterically, and she asked the officers, “Can I at least have five minutes to console her?” They said no. In another case, the father said, “Can I comfort my child? Can I hold him for a few minutes?” The officer said, “You must let them go, and if you don’t let them go, I will write you up for an altercation, which will mean that you are the one that had the additional charges charged against you.” So, threats. So the father just let the child go.

Feelings?!

 

By Caitlin Kelly

Do you start most sentences with “I think” or “I feel”?

Having, managing, expressing (or suppressing) feelings is a big deal in my life.

As someone who faced and had to cope alone with mental illness and alcoholism in one parent and frequent work-related absence in another, I learned early that no one had much interest in hearing how I felt about all of this.

So I learned to bottle it up, or to share only with close friends.

Living in boarding school and summer camp ages eight to 13 (school) and eight to 16 (camp) also meant being surrounded by strangers, some of whom became close friends — but some of whom were bullies.

You learned to keep your counsel.

So a recent workshop at a writers’ conference — where the audience was urged to write “I remember” and dredge up some memories — proved both painful and illuminating for me.

Some of us then read our initial sentences to the room, maybe 150 other professional writers; I did, as well.

I was amazed and moved by what I heard.

It made me much more aware of how limited my ability to express some feelings still is — even later in life.

I’m reluctant to show vulnerability.

I very rarely say “I love you” to someone, even when I feel it.

I’m much more comfortable (which tends to unnerve others) expressing dismay, outrage or frustration — less tender and delicate emotions.

Except — thanks to a diagnosis I received since writing this post (tiny/early/contained breast cancer) — my view has shifted radically and I’ve told a number of friends, neighbors and even professional colleagues.

This is not something to face alone.

It’s also exhausting keeping up a brave face when I don’t feel at all brave or badass but feel worried and tired dealing with six (!) doctors, even if all of them are people I like.

The greatest challenge so far has been managing my anxiety, a battle in itself, while absorbing and making lucid decisions about treatment. It’s a lot to manage.

 

Are you at ease having and expressing your feelings?