A backpack filled with stones

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By Caitlin Kelly

Had a conversation this week with a friend facing some serious health stuff. She’s not getting the support she needs and someone who should be there for her is instead adding to her very considerable stress by not being useful and making needed changes.

No one wants a backpack filled with stones.

I won’t be more specific but it was clear to me — as someone who’s had health issues (that oh-so-American euphemism for cancer) since June 2018 — that the minute you get a shitty diagnosis (or lose your job or face the loss of a loved one), your life is now weighted down in ways that may appear invisible to others but are very, very heavy and something you (mostly) alone are carrying.

Shame — especially in the U.S. where being “unproductive”, ill and needy is somehow taboo — adds yet another damn boulder.

Unless you can drop the backpack — and ask for help and count on getting it — having to listen to anything stupid, thoughtless or callous (and there’s plenty of it out there, from friends, family and medical staff) only adds another few stones.

No one wants that pack.

No one wants to carry it, sometimes for months or even years.

In tough times, their pack is already filled with grief and fear and physical pain and exhaustion and guilt and anxiety.

Carrying it isn’t much of a choice, even as others call you “brave” and “tough” and call out “you can fight this.”

If you know someone facing tough times, please do anything you possibly can to lighten their load.

Diminish that pack.

 

Do not add one more stone.

 

“You’re normal”

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Fragility is humbling and frightening

 

By Caitlin Kelly

It’s been a rough week, slowly recovering from my last radiation treatment — October 15 — and still fighting its cumulative fatigue and insane itchiness on my left breast. I was at my wits’ end, crying in public, (I almost never cry anywhere), just done.

I had a follow-up meeting with the radiation doctor, to be told I’d gained (!?) 10 pounds in six weeks and now needed blood tests to see why. This despite seeing my clothes fit more loosely and gaining compliments on my apparent weight loss.

Our GP, thankfully, saw us an hour later and did the tests; (I’m fine.)

But I started crying in his office, weary of all of it.

I apologized for being a big blubbering baby, ashamed and embarrassed by my inability to control my emotions.

“You’re normal,” he said, calmly and compassionately.

Jose, my husband, sat in the room with us, listening as I absorbed this pretty basic fact.

What, I’m not made of steel?

I’m…vulnerable?

Human?!

Kelly’s tend to be (cough) ambitious and driven; three of us won major national awards in the same month, when I was 41, my younger half-brothers then 31 and 18; I for my writing, they for business skills and for a key scientific discovery, (yes, the youngest!)

We tend to aim high, compete ferociously for as long as it takes, (each of my books, later published by major NYC houses, were rejected 25 times), and usually win, dammit!

We keep our emotions very close to the vest and keep small, tight circles of intimates. I don’t really do acquaintance.

 

Being weak, scared, in pain, exhausted and, even worse, letting others see us in this condition?

 

Terrifying.

I’m slowly getting used to it.

Compassion for my fragility is my new oxygen, as much for myself as the gratitude I feel for that shown to me.

 

 

Exposing oneself to millions

By Caitlin Kelly

Thanks to a reader here, I decided to pitch one of my earlier blog posts as a larger, reported story about medical touch — and my own experience of it — to The New York Times, and it ran today, prompting many enthusiastic and grateful tweets.

Here’s the link, and an excerpt:

It started, as it does for thousands of women every year, with a routine mammogram, and its routine process of having my breasts — like a lump of dough — manipulated by another woman’s hands and placed, albeit gently, into tight compression. It’s never comfortable, but you get used to it because you have to.

Unlike previous years, though, my next step was a biopsy, for which I lay face down, my left breast dangling through a hole in the table. Several hands reached for what’s normally a private and hidden body part and moved it with practiced ease, compressing it again into position for the radiologist’s needles, first a local anesthetic and then the probes needed to withdraw tissue for sampling.

I was fearful of the procedure and of its result and, to my embarrassment, wept quietly during the hour. A nurse gently patted my right shoulder and the male radiologist, seated to my left and working below me, stroked my left wrist to comfort me. I was deeply grateful for their compassion, even as they performed what were for them routine procedures.

 

It is decidedly weird to out one’s health status — let alone discuss your breast! — in a global publication like the Times — but it also offered me, as a journalist and a current patient undergoing treatment,  a tremendous platform to share a message I think really important.

 

I hope you’ll share it widely!

 

 

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Every patient needs to be touched kindly and gently

Life in cancerland: 18 tips

 

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By Caitlin Kelly

Some reflections on my having entered — as of June 2018 — a new and sometimes overwhelming world; if useful, please share!

 

You are not alone

You may certainly feel it as you reel with shock and try to make sense of what will happen to you next. My early June diagnosis of DCIS, (a sort of pre-cancer, even though the word carcinoma does mean cancer!) is one shared annually by 44,000 American women.

 

You will likely be in shock and feel utterly disoriented

Even if your prognosis, as mine is, is excellent, you’re stunned.

One minute, you assumed you were healthy, the next…you’ve entered cancerland, filled with sights and sounds and sensations both foreign and unwanted, that you may never have experienced.

What the hell is an aromatase inhibitor?

What are my eight tattoos for exactly?

How tired and ill will treatment make me feel?

 

You face a learning curve

Until you’ve had a biopsy, you don’t know what it feels like, during and afterward. Same for chemo and radiation and other things likely to happen. It’s all new and unfamiliar and a lot to process, physically, emotionally, intellectually — and, in the United States — financially.

 

Ask as many questions as many times, of as many medical staff — including technicians — as you need, and take notes

It’s complicated stuff!

Don’t ever feel stupid or intimidated or rushed or that your concerns are unimportant. Health care includes feeling cared for, not just surgery and medications.

 

People who have never had experience with cancer may behave in hurtful ways

Even with the most loving intentions, people may say things (oh, it’s not that bad!) or do things (send you books about cancer, unasked for) that can leave you even more anxious, scared or disoriented.

They may also tell you to “fight” and “battle” — when (if they don’t know the details) this might not even be necessary, or might not be possible. Ignore them!

This is not what you want!

 

Get off the Internet and listen to your MDs

The first advice my gynecologist gave me — who told me the news by phone — was to not start reading about this on the Internet.

I didn’t and have not and will not.

But I make my living seeking and processing vast amounts of complex information as a journalist — how could I behave this way?

Because I’m human and had to process enough new information as it is!

I also have avoided any detailed conversations about this unless with fellow patients, and not even a lot of that.

 

Some people will flee

This can be painful. It’s them, not you. As one friend (whose wife died of lung cancer) said: “You don’t know what their vulnerabilities are.”

 

Some people will step up unexpectedly

This is a great gift.

 

You will need to let some new people in, even when that feels weird to you

I find this difficult, as someone who’s always been quite private. But without allowing others to know the details of your situation and to comfort you, it’s too hard.

 

Some people will over-share and overwhelm you with their medical story

Shut them down.

This is not the time for you to hear, process and empathize with others’ details and fears. This is the time for you to focus on your needs. That may feel unkind, even brutal. Just do it.

 

If at all possible, find a medical team and hospital you like and trust

You will be spending a lot of time in their offices, possibly daily, weekly, monthly and for many years to come. If you like, trust and respect them, you will feel safe — literally — in their hands.

If you have doubts, find a team you feel good about; this is more difficult if you live in a rural area or have poor health insurance, I know.

 

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You’ll be seeing, and see and be touched by, a lot of people you have never met

That’s another stressor right there.

So far, I’ve seen more than a dozen different MDs, multiple technicians and been to two different hospitals. It’s a lot of new people, and different personalities, to cope with at once — in addition to your diagnosis and treatment.

As one friend told me, you’re spending a lot of emotional capital.

 

Ignore (most) others’ advice!

People will rush to give you all sorts of advice, leads, insights and tips. Everyone’s body is different. Everyone’s tolerance for pain is different.

Just because they or someone they know had a better/worse/horrific/painful outcome, this may not be your experience.

Don’t let their possibly frightening, unhelpful or inaccurate data bombard you while in a weakened physical or emotional state.

 

Educate a few people about your cancer — and let them do the talking for you

It’s time to conserve all your resources, especially time and energy. People who have not faced cancer, and your specific kind of it (what stage, where are you in treatment, invasive, recurring, metastatic, ER+, etc.) have no clue.

Having to keep explaining things to them can be too tiring and upsetting.

 

Do whatever comforts you most deeply

That might mean withdrawing from most social events to save your energy. Hugging your kids or pets. Knitting or playing video games or binge-watching TV, prayer and meditation.

 

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Rest as much as possible

Your mind and body are under assault. Naps are your best friend.

 

You don’t have  to be “brave”

People will tell you how brave you are.

You’re just doing what you have to to stay alive, even if (as I have) you might be fearful and crying a lot to a few people. Even a good diagnosis is enough to shake you hard.

 

Ask for help — and don’t think twice about it!

You may need help getting to and from medical appointments — tests, bloodwork, chemo, whatever. Even if you’re not feeling tired or weak, it is deeply comforting to have a friend or loved one waiting for you when you emerge from whatever it is you faced that day.

Having someone to drive you there and back is a real blessing. Ask for it, and accept it with relief and gratitude. Same for dog-walking, babysitting, food shopping, cooking, laundry.

Love is action.

 

A summer of reckoning

 

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By Caitlin Kelly

 

I’m so ready for this summer to end!

 

Not being a beach person, I don’t spend the year eagerly awaiting summer, as many of our friends do.

And this summer has felt like a series of waves smashing us both in the face:

— Husband now using insulin and adjusting to all that it entails

— My breast cancer diagnosis right around my June 6 birthday

— The ensuing tests, procedures and appointments that have consumed precious days of lost work/income since my husband and I are both wholly freelance, with no paid time off that we don’t fund ourselves. (Thank God for savings.)

— Multiple $100 co-pays to have some of these tests and procedures.

— An infection in my breast, six weeks post-op. Extremely painful, but resolved. Breasts are such sensitive things!

— Two friends widowed the same week, a friend’s young adult daughter dying and the sudden and shocking death of a former colleague and friend.

— Far too many days shuttered indoors with AC blasting, curtains drawn, escaping 90+ degree heat

— Far too many days with torrential rain

OK, what’s been good?!

 

— Meeting a new Canadian-in-the-States friend, a fellow writer living in Oakland, CA and his husband who came to NYC and joined us for dinner.

— The thoughtful gift of a classic Hermes silk scarf from a friend; it belonged to her mother, who died last year and was a dear friend of ours.

— So many loving cards, emails, flowers and phone calls from friends worldwide as I adjust to a new reality.

— Blowing insane money on a designer handbag, (on sale, dammit!) after my diagnosis

 

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— Jose made us gorgeous new wooden planters and the brilliant orange marigolds and fragrant lavender have been amazing. I love watching bees dive into the salvia each morning.

— Discovering how multi-talented my friends are, both journalists like me, one of whom made us home-made soap, the other really delicious home-made bread. I love all things artisanal and am in awe of such colonial skill.

— Snagging a potentially very good new freelance opportunity after seeing an editor participating in a Twitter chat. We met in NYC for lemonade and hit it off.

 

How’s your summer been?

Highs?

Lows?

A few more thoughts about feelings

 

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By Caitlin Kelly

 

It’s been quite the rollercoaster, kids!

First off — very good news! My surgery July 6 went great and I’m free of disease.

What a blessed relief. I start radiation treatment in September.

But…what a disorienting time it’s been.

Jose, my husband, and I are career journalists — who, since the age of 19 when we began working for national publications even as college undergrads — learned early that having, let alone expressing, our feelings was an impediment to just getting shit done.

When you’re on deadline, no matter how stressed/tired/hungry/thirsty/in pain you might actually be, you have to get the bloody story done.

Jose, working as a New York Times photographer, once stepped on a nail so long it punctured his boot and his foot while covering the aftermath of a hurricane in Florida. He’d flown down — yes, really — aboard Air Force One, as he’d been in Connecticut covering Bush. He got a tetanus shot as the jet took off to head back to New York.

But this has meant, for decades, whatever we truly felt in a difficult situation — also listening to and photographing war, trauma, crime victims, fires — we suppressed our fear, grief, sadness. It might have popped out later, privately, or not.

Ours is not a business that welcomes signs of “weakness” — you can lose the respect of peers and editors, losing out on the major assignments that boost our careers if you admit to the PTSD that can affect us — even if it privately stains our souls with trauma for years.

This cancer diagnosis, and the sudden and reluctant admission of my own very real vulnerability, blew my self-protective walls to smithereens.

I’ve never cried as much in my entire life, (I never was one to cry), even in the toughest situations, as I have in the past month.

Tears of fear and anxiety.

Tears of gratitude for friends’ kindness.

Tears of pain. It’s a much rougher recovery than four previous surgeries on my knees, shoulder and hip.

Tears of pure exhaustion from being medically probed and punctured for weeks on end.

Tears of worry I won’t get back to being wry, wise-cracking me. (If not, who will I be?)

I feel like a lobster cracked open.

I’ve spent my life being private, guarded and wary of revealing weakness, vulnerability or need.

My late step-mother loved to taunt me as being “needy.” That did it.

I was bullied in high school which taught me that authority figures who did nothing to stop it didn’t care about me as a person, just a number in a chair.

But this has been life-changing — not only in the rush of so many negative emotions — but the kindness, gentleness and compassion I’ve also felt with every single medical intervention. Ten minutes before being wheeled in the OR, I was laughing with my surgeon and her nurses. That’s a rare gift.

I also feel some shame at how infantile one becomes — focused with ferocious selfishness  — memememememememe! — when in pain and fear. Two dear friends were widowed and another’s adult daughter died of cancer within the same month as all of this, and it’s taken a lot of energy to offer them the attention and love they so need.

People have offered to talk to me about their experiences of breast cancer. I can’t. Too often, they plunge into detail and I can’t listen, process and empathize. It’s too much.

That may be my own weakness, because feelings can feel so overwhelming.

Interesting times….

 

Carpe the damn diem!

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All the time in the world? Maybe not…

 

By Caitlin Kelly

 

You know how this goes.

I’ll do it: tomorrow, next week, next month, next year.

Sometime.

But not right now.

I’m too: busy, tired, broke, otherwise committed, ambivalent, not sure it’s going to work out perfectly.

It might be trying for a dream job.

It might be repairing a broken relationship — or starting a tender new one, romantic or platonic.

It might committing to a course of study.

It might mean selling everything you own and/or disappearing for a while (not abandoning your loved ones.)

 

Whatever it is, I urge you to get on with it.

 

It’s the worst cliche, but a cancer diagnosis — even one as incredibly hopeful as mine is — will instantly alter how you perceive time and its brevity and its value.

I’ve cut off useless drama. I’ve turned down invitations. I’m avoiding situations I know will stress me further.

But I’m also making and planting gorgeous new wooden planters for our balcony and accepting assignments for later this summer and planning a trip, possibly to Cornwall, in the late fall.

Two dear friends — one in London, one in California — were widowed in the same week. Both were, sadly, expected but still.

Now another friend’s husband is newly diagnosed.

 

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This time last year I was carefree, solo, sunning myself in a tiny, beautiful Croatian town on the Adriatic, Rovinj. I stayed in, and loved, a boutique hotel made up of two buildings from the 18th and 17th century, walking down smooth cobble-stoned streets.

If this had happened last year, I would have lost a ton of money on prepaid flights, tickets and hotels and had to cancel a trip that was absolute heaven.

This year I’m walking down hospital corridors and consulting with six physicians, submitting to seven presurgical tests and procedures — slightly less amusing!

I am so glad I was able, financially and physically, to make that journey as a birthday gift to myself.

To take it for myself.

To give it to myself without reservation or guilt or remorse for that “wasted” time or mis-spent savings.

 

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Whatever brings you joy, get out there and claim it.

 

Today!

 

 

 

 

Feelings?!

 

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By Caitlin Kelly

Do you start most sentences with “I think” or “I feel”?

Having, managing, expressing (or suppressing) feelings is a big deal in my life.

As someone who faced and had to cope alone with mental illness and alcoholism in one parent and frequent work-related absence in another, I learned early that no one had much interest in hearing how I felt about all of this.

So I learned to bottle it up, or to share only with close friends.

Living in boarding school and summer camp ages eight to 13 (school) and eight to 16 (camp) also meant being surrounded by strangers, some of whom became close friends — but some of whom were bullies.

You learned to keep your counsel.

So a recent workshop at a writers’ conference — where the audience was urged to write “I remember” and dredge up some memories — proved both painful and illuminating for me.

Some of us then read our initial sentences to the room, maybe 150 other professional writers; I did, as well.

I was amazed and moved by what I heard.

It made me much more aware of how limited my ability to express some feelings still is — even later in life.

I’m reluctant to show vulnerability.

I very rarely say “I love you” to someone, even when I feel it.

I’m much more comfortable (which tends to unnerve others) expressing dismay, outrage or frustration — less tender and delicate emotions.

Except — thanks to a diagnosis I received since writing this post (tiny/early/contained breast cancer) — my view has shifted radically and I’ve told a number of friends, neighbors and even professional colleagues.

This is not something to face alone.

It’s also exhausting keeping up a brave face when I don’t feel at all brave or badass but feel worried and tired dealing with six (!) doctors, even if all of them are people I like.

The greatest challenge so far has been managing my anxiety, a battle in itself, while absorbing and making lucid decisions about treatment. It’s a lot to manage.

 

Are you at ease having and expressing your feelings?

 

When blogging about illness, what’s TMI? The NYT wades in — and angers many

By Caitlin Kelly

Maybe you’ve been following this recent firestorm?

The one in which Salon, a popular American website, called The New York Times’  former executive editor Bill Keller, and his wife, Gilbey’s gin heiress Emma Gilbey, despicable?

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Both of them wrote about cancer patient Lisa Adams, who has advanced breast cancer.

From Salon:

Lisa Bonchek Adams is a mother of three living with Stage 4 breast cancer. She blogs and tweets about what she is undergoing and the decisions she is making about her health; she does so frequently and to a large audience that’s rooting for her. And to a prominent husband-wife pair of journalists, she’s somehow offensive.

Bill Keller, the former executive editor of the New York Times, published an Op-Ed in that paper today indicating that Adams, in spite of the image of positivity and strength she generally broadcasts on her social media platforms, is dying and doing so in a manner somehow undignified; Keller draws a comparison between Adams and his late father-in-law. “His death seemed to me a humane and honorable alternative to the frantic medical trench warfare that often makes an expensive misery of death in America.”

That “trench warfare” has, for Adams, included a variety of medical studies; Keller indicates that Adams’ personal decisions about her health, and her expressing herself online, somehow detracts from people who choose not to undergo experimental treatments or who choose to slip under with less of what is traditionally known as “fighting.” He even finds a Stanford associate dean who is willing to say that Adams “shouldn’t be unduly praised. Equal praise is due to those who accept an inevitable fate with grace and courage.”

Here’s an analysis piece from NPR’s blog:

the piece enraged a lot of Times readers, according to public editor Margaret Sullivan, that she heard a great deal of negative feedback, and who herself said “there are issues here of tone and sensitivity.”

Boy … you can say that again. By closing the piece with a piece about a dean who “cringes” at Adams’ alleged embrace of a “combat metaphor” (unsupported by any quotes from her own writing) and salutes those who show grace and courage, Keller implicitly suggests that to handle your disease as Adams has is one way to go. The other way to go is with grace and courage. And that’s very unfortunate.

Adams herself says that Keller, along with his wife Emma Gilbey Keller, who also wrote a controversial column critiquing Adams’ handling of her cancer (that was in The Guardian and has since ), have misrepresented the basic facts of her medical status, and Keller has already admitted he got the number of kids she has wrong. These disputes have been pretty thoroughly inventoried in a . And writers at outlets including and have been sharply critical of the need to explain to a cancer patient how to handle (and discuss) having cancer.

This is an issue I’ve thought a lot about — how much to write or blog about one’s illness or surgery or medical issues — and how much to never share beyond one’s circle of intimates. People, in my view, who are the ones who are most likely to have actually visited you and your family in the hospital or come with you to the chemo suite, perhaps.

One woman I know, barely, professionally, shared a lot of detail on Facebook about the effects of chemo as she was treated (so far, successfully) for breast cancer. But there was a lot I wish she had simply kept to herself.

She got a lot of emotional support, which I understand — why she craved it and why people offered it.

My mother had a radical mastectomy in 2003. She is alive. She has survived multiple cancers, including thyroid and a meningioma, a form of brain tumor.

In other words, I already live in daily fear of my genetic heritage and have little appetite to read anything about cancer.

That is not a judgment of people who do, but the effect of knowing too much firsthand already.

I get my medical tests and keep a careful eye on my own body and that of my husband.

I’ve already stared down plenty of doctors and Xrays and seen too much and heard too much. I saw my mothers’ very large brain tumor on the Xray and had to give informed consent for her; here’s the piece I wrote about it for Chatelaine, Canada’s largest women’s magazine.

Who am I to complain when I, too, have written these sorts of stories? They can, I know, be helpful to others and provide comfort to the ill and to their families.

A friend my age died of cancer in January 2006 and several men in my apartment building are currently fighting cancer.

It’s not that I don’t care about people who are ill. It’s the reverse. Instead, I find myself worrying about people I do not even know.

For me, that’s not the best choice.

I have really mixed feelings about this sort of thing — none of which suggests I’m right.

How do you feel about someone sharing a lot of very graphic detail on-line about their illness?

Why getting sick in America is a really bad idea

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May_30_Health_Care_Rally_NP (641) (Photo credit: seiuhealthcare775nw)

One element of living in the United States sickens me to my core — the persistent inequality of access to affordable quality health care, something citizens of virtually every other developed nation take for granted.

Today the U.S. Supreme Court will hand down its decision on the constitutionality of what’s been called Obamacare, a mandate requiring all Americans to purchase health insurance. A CNN/ORC International poll released this month showed 43% of Americans favor the law, 37% think it too liberal, and 13% oppose it because it is not liberal enough.

I grew up in Canada, where health care, paid for through taxes, is offered cradle-to-grave by the government. Yes, it has some deficits, but everyone can see a doctor and go to the hospital without fear of medical bankruptcy, common here.

From this week’s New York Times:

When Wendy Parris shattered her ankle, the emergency room put it in an air cast and sent her on her way. Because she had no insurance, doctors did not operate to fix it. A mother of six, Ms. Parris hobbled around for four years, pained by the foot, becoming less mobile and gaining weight.

But in 2008, Oregon opened its Medicaid rolls to some working-age adults living in poverty, like Ms. Parris. Lacking the money to cover everyone, the state established a lottery, and Ms. Parris was one of the 89,824 residents who entered in the hope of winning insurance.

And this, on how confusing and frightening it can be to receive a fistful of enormous medical bills:

With so little pricing information available, expecting people to shop around for quality care at the lowest cost — something that’s not always possible in emergency situations — is also asking a lot of consumers. “I have always found a bit cruel the much-mouthed suggestion that patients should have ‘more skin in the game’ and ‘shop around for cost-effective health care’ in the health care market,” said Uwe E. Reinhardt, a health policy expert and professor at Princeton University, “when patients have so little information easily available on prices and quality to those things.”

President Obama’s Affordable Care Act, the health care overhaul law passed in 2010, tries to make some improvements (though the Supreme Court is expected to rule whether all or some of the law is constitutional this month). But while the law’s changes help you shop around for insurance policies — specifically through its new HealthCare.gov Web site, a one-stop shop that lists all of your insurance options in one place — it’s still unclear how effective the law will be for anyone comparing medical services.

On February 6, 2012, I had my arthritic left hip replaced. Thanks to my husband’s job, we have excellent insurance coverage, but I knew enough to do plenty of questioning, and negotiating, long before that gurney wheeled me into the OR to avoid nasty and costly surprises later. For example, I needed to make sure the surgeon would accept whatever fee my insurance company offered — decisions and prices I have no control over — but which would come bite me on the ass if I didn’t plan ahead.

I also had to make multiple calls to find out:

1) what the anesthesiologist would charge (about $3,800);

2) what my insurance would pay (about $1,000);

3) who would be on the hook for the difference. Me. (I told the billing manager I’d send my tax return to prove my income; $2,800 is a very big number for me.)

Jose, my husband, offered to look at the medical bills as they arrived, as they would only freak me out, not helpful post-surgery. The hospital — for a three-day stay, with no complications, charged $90,000. No, that’s not a typo.

Did they collect it? Probably not, but they routinely try for whatever they can get.

Then my surgeon billed $25,000. (Our insurance covered it all. Thank God.)

But…what if, like millions of Americans, I had no insurance?

Like my friend R, who is young, broke and lives without it. He recently slipped and fell on a wet sidewalk, needed an ambulance and needs physical therapy then surgery. Worst case, he’ll be paying off a huge bill for years, maybe a decade.

In my 24 years in the U.S. I’ve never lived one minute without health insurance; my mother has survived four kinds of cancer and I live an active and athletic life that also puts me at greater risk of injury. How ironic that being active, (fighting the great American scourge of obesity), can put you at risk of losing your shirt financially…

The cost of buying my own insurance, as a freelancer, left me with few additional funds for fun stuff like travel or nice clothes or shoes or replacing things in my home — air conditioner, dishwasher, computer — I needed and relied on. By 2003, it cost me $700 a month.

Health care is a right, not a privilege. We will all get sick or fall down or suffer a complicated labor or discover a tumor or suffer a heart attack. None of us is immune.

Many Americans cannot even purchase health insurance because they have — in that exquisite euphemism — a “pre-existing condition.” If you’re already sick, tough shit!

Seriously?

Life is a pre-existing condition. Americans, and their elected officials, must deal with this reality more effectively.